Why We Exist
We would like to introduce you to Taya.
When Taya was diagnosed as a newborn with biliary atresia, a liver disease that is the leading cause of liver failure in newborns and children, her parents were in absolute shock. At just 11 weeks-old, Taya underwent a five-hour procedure required to prevent further damage and save her liver. The surgery was a success, but one thing was certain; Taya would need a liver transplant in her future.
Despite some ups and downs with liver infections, Taya seemed to endure the first decade of her life quite well. However, due to her aggressive liver disease, Taya soon developed Hepatopulmonary Syndrome, a condition where blood vessels in the lungs become enlarged, causing a shortness of breath and low oxygen levels. Seeing her condition worsen, Taya’s doctors put her on the liver transplant list in August of 2017.
We are asking you to help us to fund research that will bring us one step closer to a world where no child will have to endure the same strenuous path Taya has. Research holds the key to better treatment options, diagnostics and cures, bettering the lives of over 8 million Canadians affected by liver disease as well as future generations.
After numerous tests, it was discovered that Taya’s mother Jennifer was a suitable match and could serve as Taya’s living donor. Taya successfully received a portion of her mom’s liver on December 12th, 2017. They both are currently recovering well in the hospital. But, Taya’s journey is not over yet. She will continue to be carefully monitored, learning to adapt to a new life. She has gone from being a baby with liver disease, to a young recipient of a liver transplant, where she will likely have to take anti-rejection drugs for the rest of her life.
Through it all, Taya has been an inspiration. She has remained strong and positive, with hopes and dreams for a bigger, brighter future. Her ultimate goal: living in a world where no child will suffer each day with liver disease. Please help us bring liver research to life for children like Taya.