Why We Exist

The following story shares how the ALS Society of Alberta helps to “make it possible” for those living with and affected by ALS…

Gerald Anderson’s granddaughter, Amanda, played a very special role in his life. Amanda’s wedding day was nearing and she wanted nothing more than to have her papa (as she called him), walk her down the aisle on her special day. As Gerald’s ALS diagnosis progressed, the wedding was set to take place at the Misericordia Hospital in Edmonton where he was being cared for. Amanda’s wedding day dream became a reality when Gerald was able to guide her down the aisle, thanks to help and support of the ALS Society of Alberta.

What is Amyotrophic Lateral Sclerosis (ALS)?

ALS is a rapid, always fatal, neurodegenerative disease. It attacks the nerves that the body would normally use to send messages from the brain to the muscle, resulting in weakness and wasting. Eventually, the individual with ALS is left completely immobilized, with loss of speech and eventually an inability to swallow and breathe. The sensory neurons in people living with ALS continue to function normally so that they will continue to feel the sensations of heat, cold, discomfort, etc. The mind often remains completely alert and lucid. The result is often a lively, unimpaired mind trapped in an immobilized body. The average life expectancy from symptom onset is three to five years; the real challenge in the medical community at large is correctly diagnosing ALS in the early stages, so that the ALS Society of Alberta is able to provide the maximum level of assistance to the person living with ALS and that person’s family.

Approximately 3,000 Canadians live with ALS and two to three Canadians die every day of ALS. There is no known cause or cure for this devastating disease.

What We Do

The ALS Society of Alberta is dedicated to making each day the best possible day for people living with and affected by Amyotrophic Lateral Sclerosis (ALS).

The number one priority for the ALS Society of Alberta is to ensure that each ALS client’s needs are being met. The Society relies heavily on its donors and volunteers in order to provide the best possible support and care for ALS clients in Alberta. From community events and ALS WALK fundraisers across the province, to providing care and eqiuptment for those living with and affected by ALS, the accomplishments of the ALS Society of Alberta are due to the tremendous amounts of support received throughout the community.

100% of ALS client requests were met in 2018 thanks to donor and volunteer support, including;

• 435 clients supported in Alberta
• 1,732 pieces of equipment were provided
• 103 support groups held for clients, caregivers, families and children across the province
• 40 families supported through the Support for Champions Program
• 1,671 home visits were conducted

The ALS Society of Alberta graciously appreciates ongoing donor and volunteer support in order to continue meeting 100% of client requests and to make each day the best possible day for those living with and affected by ALS.

How We Do It

The ALS Society of Alberta provides support to clients and families across the province in a number of ways including:

Equipment Loan Program

Support Groups

What You Can Do

From volunteering at or hosting your own ALS community fundraiser, to becoming a monthly donor, to attending a WALK for ALS, every inch of support received helps to make each day the best possible day for those living with and affected by ALS.

Below are some of the ways that you can help to make a difference and channel hope for a future without ALS;

Volunteer

There are many volunteer opportunities within the Society. Opportunities range from special events or awareness generating initiatives, to helping in the office with administrative duties.

Sponsorship and Monthly Giving

Your monthly gift allows us to provide the best possible support for those living with ALS in Alberta, through the equipment loan program, support groups, home visits, referrals and support for children.

Walk to End ALS and Betty’s Run for ALS

• 40% RESEARCH – Forty percent of proceeds support ongoing ALS research across the country through the ALS Society of Canada’s National Research Program.
• 60% CLIENT SERVICES – Sixty percent of proceeds support direct services for people with ALS and their families – educational information, referrals to local health care and community services, equipment assistance, home visits, and coordination of peer support groups.

Community Events

Each year, groups, teams and individuals across the province initiate fundraising events to raise funds that go toward the Society. There were over 40 community events held across Alberta in 2018.