The Huntington Society of Canada’s (HSC) mission is a world free from Huntington disease (HD). HSC strives to maximize the quality of life of people living with HD by delivering services, enabling others to understand the disease, and furthering research to slow and prevent HD. HSC is the only national organization providing critical support services to those families affected by this disease in Ontario and across Canada. Huntington disease (HD) is an inherited brain disorder that leads to physical, mental and emotional deterioration and an early death. Many describe the symptoms of HD as having elements of ALS, Parkinson’s, Schizophrenia and Alzheimer’s simultaneously.

The Society provides regulated social work services through the HSC Family Services Team to address such issues as genetic testing, the latest in research, disease impacts and concerns regarding conversations with children. HSC offers services to those affected by HD as well as community and health care providers. HSC also facilitates in person and online support groups. Family Services Team members attend HD clinic appointments and provide community referrals, educational materials, and help build connections and networks.